I shamelessly stole this title from a book The Selfish Pig’s Guide To Caring: How to cope with the emotional and practical aspects of caring for someone‘. Hugh Marriott who wrote the book is a carer for his wife. The book illustrates the problems of being a carer for someone with a disability and the problems that ensue.
Although it is not about AMD in any way it illustrates the common problems associated with suddenly be confronted by someone who has acquired a disability.
The essential message for the carer is that although they are in a caring situation, they have to look after themselves first, otherwise they are of no use to anyone.
It also highlights the problems of the carer that they can be invisible to the ‘professionals’ but are expected to jump whenever they are around. They are not trained but are expected to know exactly what to do all the time. They are also expected to undertake tasks that professionals wouldn’t do unless they have the right equipment.
This is a must read for anyone who has taken up a caring role, but has yet to have the ‘fairy dust’ of the ‘carer’ sprinkled over them yet.
If you are still feeling confused, ignorant, ignored and taken for granted. This is a dummies guide to caring. Beg steal or borrow a copy it is worth some of your time.